MALAY VERSION - MOHON SUMBANGAN TAJAAN DAN PEMBIAYAAN YURAN TERAPI TAJUL IMAN

Pos ini saya sediakan setelah beberapa rakan meminta saya forward e mail yang pernah saya hantar kepada warga UiTM sedikit masa dahulu. Mereka nak tolong forward e mail saya ni melalui whatsapp masing-masing. Justeru saya attach  e mail berkenaan dalam pos terbaru saya ini khas bagi mereka yang ingin membantu saya untuk memanjangkan nya ke group whatsapp masing-masing, Anda yang ingin saya forward e mail ini kepada rakan e mail anda boleh memberitahu alamat e mail anda di blog saya atau text message/ SMS alamat e mail anda ke hp saya 01126451058 dan suami 0129628165. Pertolongan anda saya dahului dgn ucapan terima kasih. Hanya Allah jualah yang membalas jasa baik kalian. Sambil membaca e mail di bawah rasanya boleh dengarkan kisah Iman dengan klik pada ikon "Iman's Story on Air" tu.

Salam sejahtera buat semua,

Saya, Puan NORLAILA MAT TAHIR mempunyai 2 orang anak OKU penghidap Autism dan Hiperaktif berusia 13 dan 10 tahun. Abang (Muhammad Tajul Iman) merupakan severe Autism  dan adik (Muhammad Aidil Irfan) merupakan penghidap mild Autism. Blog kami http://imanspecialboy.blogspot.com

Tajul Iman terpaksa diberikan ubat penenang (Retailin dan Risperidone) sejak 4 tahun dahulu bagi mengawal masalah tingkahlaku dan keaktifannya, namun sehingga kini masalah tingkahlaku beliau masih belum dpt diatasi sepenuhnya. Beliau masih sentiasa bermain air liurnya hingga bau hanyir tubuh dan pakaiannya sudah jadi biasa buat kami semua di rumah. Beliau masih suka mengoyakkan baju dan seluarnya, cadar katil, sofa serta merosakkan peralatan elektrik di rumah. Ini semua adalah contoh maslah tingkahlaku yang perlu diatasi dengan kadar segera.

Keadaan hidup kami sekeluarga juga makin mencabar dengan fenomena windscreen kereta dan sliding door pecah selang 3-4 bulan, skrin Telivisyen diketuk sehingga hilang gambar sehingga kami terpaksa akur dengan kejadian kerosakan TV 2-3 kali setahun. Mesin basuh kami baru sahaja dirosakkan oleh Tajul Iman pada minggu pertama Ramadhan. Semua ini sedikit sebanyak mengganggu kesihatan emosi dan komitmen saya sebagai wanita bekerja dan pada masa yang sama sedang meneruskan pengajian di peringkat Phd.

Anak ini juga jarang tidur malam. Kalau dia tidur pun, paling awal jam 4 pg setiap hari. Ini menjejaskan kesihatan saya sebagai seorang ibu berusia 45 tahun. Justeru Doktor Pakar menasihatkan saya agar anak ini menjalani terapi tingkahlaku sekerap mungkin krn dikhuatiri keadaanya akan bertambah serius jika ubahsuai tingkahlaku (Behavior Modification) tidak dilakukan dgn konsisten. Dengan adanya terapi yang konsisten, dengan izin Allah mungkin masalah tingkahlakunya akan dapat ditangani dengan baik dan saya sebagai penjaga pun akan dapat mengatasi masalah stress dan boleh mencapai kesimbangan antara kerjaya dan rumahtangga di samping dapat menamatkan pengajian di peringkat Phd yang sudah berlarutan selama hampir 10 tahun.

Seorang lagi anak saya, Irfan yang berusia 10 tahun pula tidak separah abangnya dari segi tingkahlaku, dia tidak mengamuk atau tantrum, namun sehingga sekarang dia masih belum faham bahawa dia harus mencuci punggungnya apabila selesai ke tandas. Justeru pihak saya memerlukan kos terapi yang agak besar untuk kedua2 anak ini kerana kedua2nya masih belum mampu menguruskan diri. Irfan masih belum kenal ABCD hingga sekarang ini, apa lagi mengira dan membaca. Justeru sumbangan kalian mungkin dapat memberikan peluang kpd anak2 ini utk mendapatkan pendidikan khas berkonsepkan “home tuition” yang ditawarkan oleh guru2 pendidikan khas.

Ini ujian buat saya bilamana anak ini dikenalpasti menghidap Autism parah selepas 2 bulan saya mendaftar sebagai calon Phd di UKM Bangi lama dahulu. Perjalanan Phd saya amat sukar, selepas beberapa kejadian termasuklah yang terbesar dimana kesemua borang soalselidik,  alat radas serta laptop saya musnah dalam kebakaran selepas saya selesai mengumpul data pada November 2007. Pengumpulan data semula hanya berjaya ditamatkan pada Mac 2009.  Walau bagaimanapun ujian yang bertimpa-timpa yg saya lalui banyak mengganggu kelicinan proses pengajian sehinggalah saya akur dgn penulisan tesis yang terbengkalai dan data yang telah obsolete kerana masih gagal menamatkan penulisan sehingga sekarang. Namun saya masih belum berputus asa dan masih ingin meneruskan pengajian walau dengan apa cara pun. Alang2 saya akan dikehendaki membayar balik ke UiTM dgn jumlah yg agak besar juga, saya akan teruskan semampu boleh. Saya yakin ada hikmah di sebalik semua ujian ini.

Saya terdorong memohon sumbangan ini kerana mendapati keadaan kesihatan anak saya Tajul Iman yang semakin merosot kebelakangan ini. Dia kerap mencakar mukanya hingga berdarah. Saya amat bimbang akan nasibnya setelah ketiadaan saya nanti. Siang tadi saya terserempak dengan seorang lelaki muda yang berjalan tidak berselipar di atas jalanraya. Menitis airmata memikirkan, apakah nasib Tajul Iman akan sebegini jika saya gagl memberikan pendidikan dan terapi sebaik mungkin buatnya sekarang ini pada usianya 13 tahun?

Tujuan saya memohon sumbangan ialah untuk  memastikan anak saya dapat menjalani terapi ubahsuai tingkahlakunya secara konsisten. Ini kerana saya merasakan agak kurang mampu membiayai yuran terapi yang agak mahal (minima RM100 per sesi selama sejam)

Saya terdorong mengirimkan e mail ini kpd anda semua yang mungkin berpotensi memanjangkan e mail ini melalui facebook, Instangram mahupun whatsapp anda semua yang mugkin akan membantu saya menjalani ujian mencabar ini dan memberikan harapan besar untuk kemandirian hidup anak saya Tajul Iman setelah ketiadaan saya dan suami nanti. Saya ada membaca blog tertentu dari luar negara dan dilaman facebook, ada insan2 berhati mulia di luar sana yang sanggup membiayai terapi ubahsuai tingkahlaku anak saya dengan memberikan sumbangan secara bulanan.

Kadar terendah bagi terapi ubahsuai tingkahlaku yg saya temui di Dungun adalah agak tinggi. Paling murah utk Behaivoral Modification Therapy utk anak Autism ialah RM100 sejam. Terapi yang saya dapatkan di Hospital Dungun sebanyak sebulan sekali di Unit Rawatan Fisioterapi rasanya tidak memberikan kesan yang signifikan terhadap masalah tingkahlaku anak ini. Terapi tingkahlaku yang lebih kerap saya harapkan dapat membantu anak ini untuk mengawal tngkahlakunya.

Bersama e mail ini saya sertakan name card yang saya design bagi memohon sumbangan bagi saya menangani masalah tingkahlaku anak istimewa penghidap Autism parah saya iaitu Muhammad Tajul Iman. Saya tidak menyalahkan anak ini sebagai faktor kegagalan saya dalam meneruskan pengajian dan berkerjaya, namun keadaan kesihatannya yang agak meruncing boleh mempengaruhi kelicinan proses pengajian dan pekerjaan saya.

Minta kawan2 mendoakan kesihatan, kesejahteraan dan kesabaran saya dalam melalui ujian ini. Sumbangan anda semua, hanya Allah jualah yang akan mampu membalasnya.

Sekian Terima kasih.

WHY DO WE NEED SOME FUND FOR TAJUL IMAN?

Iman is already 13 yr old this year. Life becomes harder for me as he's growing up, still with a series of tantrums everyday even though I had done many things for his treatment, therapies, going to see Ustaz,  I'm yet to say NO for all my efforts. Sometimes I noticed, my boy used to be more aggressive every time I came back from the Ustaz place. Something should be done as I think that it might be something mysterious about him, there must be something IN HIM?  I mean in his body that makes his condition worse every time I saw an Ustaz.

It was one day when I drove my car, on way way back from Irfan's school, I saw a man on the road, walking around without shoes. I cried. I was thinking what will happen to Tajul  Iman when  I am no more in the world? Tears running down my cheek. That was during Ramadhan this year, 2016. A week after that the God send me help by sending an Occupational Therapist right in front of me when I brought my three sons, playing at the playground. She said that she is a Freelance Therapist, doing Occupational Therapy and Speech Therapy. Alhamdulillah, this girl is doing both. I speak my mind! But unfortunately, she said that her rate is RM100 per hour. 

I was happy to see the Occupational Therapist but at the sane time I was upset as I can't make it with my financial constraints, especially after my 6 months half paid leave, also my hubby for his 4 months half paid leave. We had to apply for our 10 months  half paid leave years back in 2012 when Tajul Iman was drastically terminated from Autism Lab UKM.. We suffer a lot since that day, as we are still having our financial problem until now. To cover all our financial commitment during that 10 months period. I remembered my hubby was in Tawau that time, and he had to apply his 4 months leave first as that time, I faced problem to find somebody to take care of Tajul Iman when I had to travel all the way from Bangi to Shah Alam everyday.

There was also no single institution to accept my boy for his daycare. There was no qualified maid either. A maid with patience and empathy to take care of my boy during my working hours. The last one was terminated after my daunting experience with her. I witnessed her abusing Tajul Iman in the bathroom when I came back with a cab one day. That was when my car broke down in Putrajaya. 

Considering about my son's condition right now, I said to myself. "There must be NO FURTHER DELAY!" . He's already 13 and I'm growing older. What if time comes and I got to see my God?So coming back to my house after I saw the Occupational Therapist, I straight away I got my laptop on my table and started to design a name card for me. This time, it is purposely for Tajul Iman. His funds for his therapy. I pray to the God, Oh God, please give me one way out of this problem. I got to treat my son's behavioral problem with a consistent and frequent therapy. Not later but NOW. ASAP. Before I GO!

My first attempt was to send a mesage via Lotus Note to all my friends at UiTM Dungun. I posted my e mail on the third week of Ramadhan. Taking into account for those who want to benefit the month of Ramadhan for their devotions to the God via "SEDEKAH JARIAH". At first I thought it was a mistake. Is it going to be embarassing? I'm a lecturer? Why do I need to ask for money??? I asked myself again nand again. AM I doing the right thing? But as a  Mom's instinct and efforts,  I'LL DO ANYTHING FOR MY BOY regardless on what people say. Are they contributing anything for all the damages my boy had made, to my car windscreen? To my TV, refrigerator, washing machine? and when my boy was critically injured himself in the midst of the night? Do they willing to help me? I was the one who drove my car with my hubby to the emergency room! 

I had both positive and negative feedback, after I sent the e mail. Ahamdulillah, they are mostly positive feedback. Sadly to say. among all those positive feedback, I counter a few people sending me some text messages:

1. advising me not to bee too desperate until I might make used of my own boy for people's sympathy, to get rid of my financial constraints

2. somebody text to me asking about my total household income

3. the Kebajikan Staf people called me and said that they will help me to support Tajul Iman's therapy. She said, I don't have to send that kind of e mail as if there's no help from my own organization. 

4. Some negative feedback via text messages from unknown numbers. I just delete all of them. I forgive them for all their statements. Only God knows THE HEART OF A MOM!

During Raya Festival I came to see my friend who is working at UiTM Perlis. She suggested to me that I should forward my e mail to all UiTM branches as to her, there's nothing wrong. It's just an  e  mail from a mom, who really concern about her special son! So on 17th of July I forwarded my e mail to other branches.

 I knew that my boss is not happy with what I'm doing but as far as I'm concern, the "kebajikan staff" department will just help me in terms of issuing "Borang Sara Ubat" and that might be subject to the available budget from UiTM. As we know Malaysian Government is now having a financial crisis. I'm just doing my own effort so that I won't have to rely solely on my employers.

My focus now is to treat Tajul Iman as much as I can. Of course, they will support me in terms of  Iman's Therapy but not for Irfan which I consider him not serious as compared to Tajul Iman, but I can't just leave him that way. Irfan must also go for his own therapy and home tuition for special kids and I don't think my organization will be able to cater both two boys in terms of their educational needs. Irfan is already 10 yr old but STILL CAN'T READ and MANAGE himself! Attached is my name card for those who want to contribute for my son's therapy. His BSN account number 0511529000111162 (MUHAMMAD TAJUL IMAN B. TAJULDDIN) My Bank Islam acc 12029020643689 (NORLAILA MAT TAHIR) and my hubby's Maybank acc 163019388893 (TAJULDDIN MUHAMMAD)