My Gratitude to All Blog Visitors

Today I received a lot of comments from the blog visitors, also some suggestions for me to treat my son, (with all the ustaz and traditional medication). I really appreciate those comments and those magical words from peoples out there. Thank you for helping me out with all these issues in coping up with my son's behavior and tantrums. May God bless you. Hope this blog will become a TWO way communication between us.

As a said earlier, sharing of experience with focusing on Parent's Health and Education is one of  my major objectives in initiating this Blog. Thus, I hope you'll always keep yourself updates with "Parent's Health and Education" section as I'd already allocate this section for you to improve your health and parenting knowledge.

May all of us get the maximum benefit from our sharing through this medium. You can also get more tips on health and education by becoming a member of my facebook account "Kelab Nutrisi Herbalife Norlaila" and my blog http://tjl-weightlossgain.blogspot.com

Parent's Health

To all caregivers of children with special needs, I understand all of us have our own health problems. I need to share some knowledge with you on how our life constraints (as caregivers) can lead us to an unhealthy lifestyle. Some situations are explained below:-

1. Not enough sleeping time - we use to have less than 6 hours sleeping at night due to our inablility to go to sleep early. As for me, my son use to sleep late, average 3 am everyday, resulting me to have an average of just 3 hours sleeping time since he was 2 years old. How it can contributes to my health problems?

Answer:Lack of sleeping will cause Leptin hormone (satiety hormone) which works as a signal telling that we're already full. Meaning that, the deficiency of Leptin hormone will caused you to eat more, resulting obesity problem.

Lack of sleeping time can also elevates the level of Cortisol Hormone. This is a stress hormone that can bring stress to you. It's not only makes you feel stress, but also it helps in accumulating fats in your body resulting to abdominal obesity. For further information See this

http://www.ingentaconnect.com/content/ben/cvp/2007/00000005/00000002/art00001

Lack of sleeping can also cause Angina (Chest pain)

Lack of sleeping can also cause Anxiety Disorder

SHARE YOUR EXPERIENCE WITH US!!!

Please post your your comments!!! It can be your experience, some tips for us to cater with our problems in handling Iman's behavior and may be some other resources of materials that might be useful. Thank you!!

Latest update (till July, 28)

I got these feedbacks from my e mail (Lotus Note UiTM). Hope this can help you.

Dear Norlaila,

I am touched by your  sharing. I am a lecturer with APB UiTM Sarawak with a 21 year old autistic son. I founded the Sarawak Autistic Association which is now known as the Kuching Autistic Association. That was in the 1990's with little awareness of autism among people. He was diagnosed only at the age of 7 in KL.  Together with two other families, my husband and I  started the first autistic class using our own funds to train and pay the teacher before the association was registered.  Now the association is building a permanent centre for the autistic children including educational and vocational training as well as group homes. I have written a book "Into a New World" published by UPENA sharing some of my experiences with my son. Maybe you can try to get a copy. In fact, I have written a novel but I did not publish it as some of the things are personal. If I want to share it, I will need some editing first.

Regards

Roselind Wee

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salam puan.

saya bersimpati dgn takdir yg menimpa ....semoga Allah SWT memberi ganjaran pahala yg besar berkat ketabahan puan sekeluarga dlm menjalani ke hidupan ini...sekadar utk makluman puan dan lain lain keluarga yg memiliki anak yg senasib ini. pihak Fakulti Sains Kesihatan khususnya jabatan kami memiliki ramai pensyarah berpengalaman (working experience beside teaching experiences )  dalam bidang pediatric rehabilitation. puan boleh meminta khidmat nasihat pemulihan berkaitan dgn nasib anak ini dari kami....insyallah kami sedia membantu...

sekian

Halil Rusdi
Pensyarah
Jabatan Occupational Therapy
Fakulti Sains Kesihatan
Kampus UiTM
Bandar Puncak Alam
Kuala Selangor.

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Salam Sejahtera
Here are the details of the PUsat rawatan Islam Al Hidayah. Plz read & give it a try yar.
Tqvm

Alamat & Nombor Telefon

No. 1, Jalan Bestari Indah, Villa Bestari Sungai Pusu 53100 Gombak Kuala Lumpur 019 315 9377 03 6187 3001

Jadual Klinik

PENGUMUMAN PENTING Assalamualaikum wbrt. Kepada pesakit-pesakit dan orang ramai yang kami hormati, Kami ingin memaklumkan bahawa mulai January 2011, klinik Perubatan Syifa Al-Hidayah akan bertukar operasi dibawah organisasi baru iaitu PUSAT RAWATAN ISLAM AL-HIDAYAH Memandangkan permintaan pesakit yang sangat ramai, waktu urusan klinik baru ini akan ditukar mengikut waktu masa bekerja iaitu dari 9 pagi hingga 5 petang dari hari Isnin hingga Khamis. Klinik akan buka pada waktu malam dari jam 9 malam hingga 11.30 malam dari hari Isnin hingga Khamis sahaja. Jadual rawatan di cawangan-cawangan klinik kami di luar Lembah Klang yang kami lawati sebulan sekali atau dua bulan sekali adalah sama seperti sediakala. Pada masa ini cawangan-cawangan klinik kami ada di bandar-bandar berikut - Melaka, Kuala Terengganu, Pulau Pinang, Kuching, Kota Kinabalu, Tawau, Sandakan, Langkawi dan Singapura. Dengan perlaksanaan jadual operasi klinik yang baru ini kami perlu menjalankan perkhidmatan perubatan sepenuh masa. Dengan itu kami akan mengenakan bayaran untuk perkhidmatan yang diberi bagi menampung kos pengendalian klinik dan sara hidup keluarga kami, memandangkan kami tiada lagi bekerja sepenuh masa seperti dahulu. Bayaran perkhidmatan untuk setiap pesakit untuk satu rawatan di klinik Gombak dan di klinik cawangan-cawangan di luar Lembah Klang adalah sebanyak RM50, kecuali kes-kes rasuk bayaran rawatan adalah sebanyak RM80. Sebanyak 20% dari bayaran perkhidmatan ini akan disalurkan kepada Tabung Pembinaan Rumah Anak Yatim Nur Hidayah di Janda Baik. Kami harap dengan perubahan jadual klinik dan penglibatan kami sepenuh masa di klinik ini dapat meningkatkan perkhidmatan dan juga mempercepatkan lagi jadual temujanji pesakit. Nombor talian talipon klinik baru ialah 03 6186 7368 (waktu pejabat isnin hingga khamis). UNTUK MAKLUMAN SEMUA, KLINIK AKAN TUTUP SELAMA 2 MINGGU DARI 11 JUNE HINGA 26 JUNE 2011 SEBAB SEMUA KAKITANGAN KLINIK AKAN MELAKUKAN IBADAH UMRAH. KLINIK AKAN MUKA SEMULA PADA HARI ISNIN 27 JUNE, 2011. SLOT "SYIFA" DI DALAM RANCANGAN NASI LEMAK KOPI O DI TV 9 Kami ingin memaklumlan mulai 28 January 2011, kami akan sertai rancangan NASI LEMAK KOPI O di TV 9 dalam slot "SYIFA" pada setiap hari Jumaat dari jam 9 pagi hingga 10 pagi. Slot "SYIFA" dalam rancangan Nasi Lemak Kopi O ini akan dirakam secara live setiap pagi Jumaat. Dalam rancangan ini kami akan membincangkan topic-topic tertentu seperti kemurungan, rasuk, kanser, gangguan saka dan lain-lain lagi. Kami juga akan memberi rangkaian ayat-ayat AL-Quran sebagai penawar kepada penyakit-penyakit yang dibincangkan pada hari itu. Para penonton boleh menalifon dan bertanya kepada kami soalan-soalan atau sebarang kemushkilan berkenaan topic yang dibincangkan.

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Puan Norlaila,

It's an honour for me to read your story.  My respect goes to you for standing tall & STRONG for Iman and your family.  What makes me respond to your email is because my son's name is also Iman. and he is only 11 months and 26 days.

Please never ever give up.  Allah had a grand plan for you and family.
I have watched this Darul Syifa conducted by Ustaz Lokman & Asyraf Muslim on Nasil LEmak & Kopi o.  They did cure a Autisme child by reciting Al Quran verses.  If i m not mistaken, there are certain verses in the Koran where you can recite daily just like taking medicine daily...
Please try yar..

Warmest regard,
Razanawati Haji Nordin

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Assalamualaikum Pn. Norlaila,

Terima kasih di atas perkongsian pengalaman puan sekeluarga.
Ianya sebagai eye opener to me as a mother to 3 lil' ones (5yrs girl -2.5yrs girl -1.5yrs boy).
Tears came running down my cheeks as i was reading iman's blog.

Begitu berat ujian yang puan sekeluarga terima,

Begitu tinggi kesabaran yang dituntut,

Begitu besar pengorbanan yang dicurahkan,

Begitu berharga kasih dan sayang yang terpancar,

Begitu mendalam keinsafan yang datang menerpa,

Begitu terkesan pengajaran (tarbiyyah) yang Allah berikan.

Semoga tindak tanduk kita sentiasa mendapat petunjuk dari Allah SWT dan semoga Allah SWT memilih kita termasuk di kalangan "those rightly guided".

Bilamana mendapat ujian berat, kita selalu diilhamkan bahawa segala yang datang adalah dgn izin Allah, Tuhan yang Maha Pengasih lagi Maha Penyayang. Tiada sesuatu pun yang lebih pengasih dan lebih penyayang melainkan Dia.

Terimalah kita, ujian anak dan tarbiyyah ini dari Allah dengan penuh redha, syukur dan insaf kerana ada balasan terbaik yang Allah ingin kurniakan kelak.

<nasihat kepada saya juga> Buatlah yang terbaik sehingga bila kita kembali kepadaNya nanti, amanah anak (termasuk anak istimewa) yang diberikanNya, insya Allah telah kita sempurnakan sebaiknya.

Be strong and be patient,
You both are the choosen parents for Tajul Iman,
You are not alone, Allah is always with you.

Ikhlas,
Ainul Haniza Mohd Rashid
Pensyarah Pengurusan,
Fakulti Pengurusan Perniagaan,
UiTM Perak.
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From facebook Autisme Malaysia

Jouyin Teoh -

Dear parents, how to get the most out of your occupational therapy sessions - posted earlier but link didn't show properly so reposted - this article is written by an OT so don't be shy about asking the right questions!

The Thinking Person's Guide to Autism: What to Ask of an Occupational Therapistthinkingautismguide.blogspot.com

Hi parents, a helpful post on what to ask from your occupational therapy services :)

Http://thinkingautismguide.blogspot.com/2010/07/what-to-ask-of-occupational-therapist.html

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Autism Documentary: How to Recognize the Early Signs of Autism