My Gratitude to All Blog Visitors

Today I received a lot of comments from the blog visitors, also some suggestions for me to treat my son, (with all the ustaz and traditional medication). I really appreciate those comments and those magical words from peoples out there. Thank you for helping me out with all these issues in coping up with my son's behavior and tantrums. May God bless you. Hope this blog will become a TWO way communication between us.

As a said earlier, sharing of experience with focusing on Parent's Health and Education is one of  my major objectives in initiating this Blog. Thus, I hope you'll always keep yourself updates with "Parent's Health and Education" section as I'd already allocate this section for you to improve your health and parenting knowledge.

May all of us get the maximum benefit from our sharing through this medium. You can also get more tips on health and education by becoming a member of my facebook account "Kelab Nutrisi Herbalife Norlaila" and my blog http://tjl-weightlossgain.blogspot.com

Parent's Health

To all caregivers of children with special needs, I understand all of us have our own health problems. I need to share some knowledge with you on how our life constraints (as caregivers) can lead us to an unhealthy lifestyle. Some situations are explained below:-

1. Not enough sleeping time - we use to have less than 6 hours sleeping at night due to our inablility to go to sleep early. As for me, my son use to sleep late, average 3 am everyday, resulting me to have an average of just 3 hours sleeping time since he was 2 years old. How it can contributes to my health problems?

Answer:Lack of sleeping will cause Leptin hormone (satiety hormone) which works as a signal telling that we're already full. Meaning that, the deficiency of Leptin hormone will caused you to eat more, resulting obesity problem.

Lack of sleeping time can also elevates the level of Cortisol Hormone. This is a stress hormone that can bring stress to you. It's not only makes you feel stress, but also it helps in accumulating fats in your body resulting to abdominal obesity. For further information See this

http://www.ingentaconnect.com/content/ben/cvp/2007/00000005/00000002/art00001

Lack of sleeping can also cause Angina (Chest pain)

Lack of sleeping can also cause Anxiety Disorder

SHARE YOUR EXPERIENCE WITH US!!!

Please post your your comments!!! It can be your experience, some tips for us to cater with our problems in handling Iman's behavior and may be some other resources of materials that might be useful. Thank you!!

Latest update (till July, 28)

I got these feedbacks from my e mail (Lotus Note UiTM). Hope this can help you.

Dear Norlaila,

I am touched by your  sharing. I am a lecturer with APB UiTM Sarawak with a 21 year old autistic son. I founded the Sarawak Autistic Association which is now known as the Kuching Autistic Association. That was in the 1990's with little awareness of autism among people. He was diagnosed only at the age of 7 in KL.  Together with two other families, my husband and I  started the first autistic class using our own funds to train and pay the teacher before the association was registered.  Now the association is building a permanent centre for the autistic children including educational and vocational training as well as group homes. I have written a book "Into a New World" published by UPENA sharing some of my experiences with my son. Maybe you can try to get a copy. In fact, I have written a novel but I did not publish it as some of the things are personal. If I want to share it, I will need some editing first.

Regards

Roselind Wee

-----------------------------------------------------------------------------------------------------------

salam puan.

saya bersimpati dgn takdir yg menimpa ....semoga Allah SWT memberi ganjaran pahala yg besar berkat ketabahan puan sekeluarga dlm menjalani ke hidupan ini...sekadar utk makluman puan dan lain lain keluarga yg memiliki anak yg senasib ini. pihak Fakulti Sains Kesihatan khususnya jabatan kami memiliki ramai pensyarah berpengalaman (working experience beside teaching experiences )  dalam bidang pediatric rehabilitation. puan boleh meminta khidmat nasihat pemulihan berkaitan dgn nasib anak ini dari kami....insyallah kami sedia membantu...

sekian

Halil Rusdi
Pensyarah
Jabatan Occupational Therapy
Fakulti Sains Kesihatan
Kampus UiTM
Bandar Puncak Alam
Kuala Selangor.

....................................................................................................................................................................

Salam Sejahtera
Here are the details of the PUsat rawatan Islam Al Hidayah. Plz read & give it a try yar.
Tqvm

Alamat & Nombor Telefon

No. 1, Jalan Bestari Indah, Villa Bestari Sungai Pusu 53100 Gombak Kuala Lumpur 019 315 9377 03 6187 3001

Jadual Klinik

PENGUMUMAN PENTING Assalamualaikum wbrt. Kepada pesakit-pesakit dan orang ramai yang kami hormati, Kami ingin memaklumkan bahawa mulai January 2011, klinik Perubatan Syifa Al-Hidayah akan bertukar operasi dibawah organisasi baru iaitu PUSAT RAWATAN ISLAM AL-HIDAYAH Memandangkan permintaan pesakit yang sangat ramai, waktu urusan klinik baru ini akan ditukar mengikut waktu masa bekerja iaitu dari 9 pagi hingga 5 petang dari hari Isnin hingga Khamis. Klinik akan buka pada waktu malam dari jam 9 malam hingga 11.30 malam dari hari Isnin hingga Khamis sahaja. Jadual rawatan di cawangan-cawangan klinik kami di luar Lembah Klang yang kami lawati sebulan sekali atau dua bulan sekali adalah sama seperti sediakala. Pada masa ini cawangan-cawangan klinik kami ada di bandar-bandar berikut - Melaka, Kuala Terengganu, Pulau Pinang, Kuching, Kota Kinabalu, Tawau, Sandakan, Langkawi dan Singapura. Dengan perlaksanaan jadual operasi klinik yang baru ini kami perlu menjalankan perkhidmatan perubatan sepenuh masa. Dengan itu kami akan mengenakan bayaran untuk perkhidmatan yang diberi bagi menampung kos pengendalian klinik dan sara hidup keluarga kami, memandangkan kami tiada lagi bekerja sepenuh masa seperti dahulu. Bayaran perkhidmatan untuk setiap pesakit untuk satu rawatan di klinik Gombak dan di klinik cawangan-cawangan di luar Lembah Klang adalah sebanyak RM50, kecuali kes-kes rasuk bayaran rawatan adalah sebanyak RM80. Sebanyak 20% dari bayaran perkhidmatan ini akan disalurkan kepada Tabung Pembinaan Rumah Anak Yatim Nur Hidayah di Janda Baik. Kami harap dengan perubahan jadual klinik dan penglibatan kami sepenuh masa di klinik ini dapat meningkatkan perkhidmatan dan juga mempercepatkan lagi jadual temujanji pesakit. Nombor talian talipon klinik baru ialah 03 6186 7368 (waktu pejabat isnin hingga khamis). UNTUK MAKLUMAN SEMUA, KLINIK AKAN TUTUP SELAMA 2 MINGGU DARI 11 JUNE HINGA 26 JUNE 2011 SEBAB SEMUA KAKITANGAN KLINIK AKAN MELAKUKAN IBADAH UMRAH. KLINIK AKAN MUKA SEMULA PADA HARI ISNIN 27 JUNE, 2011. SLOT "SYIFA" DI DALAM RANCANGAN NASI LEMAK KOPI O DI TV 9 Kami ingin memaklumlan mulai 28 January 2011, kami akan sertai rancangan NASI LEMAK KOPI O di TV 9 dalam slot "SYIFA" pada setiap hari Jumaat dari jam 9 pagi hingga 10 pagi. Slot "SYIFA" dalam rancangan Nasi Lemak Kopi O ini akan dirakam secara live setiap pagi Jumaat. Dalam rancangan ini kami akan membincangkan topic-topic tertentu seperti kemurungan, rasuk, kanser, gangguan saka dan lain-lain lagi. Kami juga akan memberi rangkaian ayat-ayat AL-Quran sebagai penawar kepada penyakit-penyakit yang dibincangkan pada hari itu. Para penonton boleh menalifon dan bertanya kepada kami soalan-soalan atau sebarang kemushkilan berkenaan topic yang dibincangkan.

.....................................................................................................................................................................

Puan Norlaila,

It's an honour for me to read your story.  My respect goes to you for standing tall & STRONG for Iman and your family.  What makes me respond to your email is because my son's name is also Iman. and he is only 11 months and 26 days.

Please never ever give up.  Allah had a grand plan for you and family.
I have watched this Darul Syifa conducted by Ustaz Lokman & Asyraf Muslim on Nasil LEmak & Kopi o.  They did cure a Autisme child by reciting Al Quran verses.  If i m not mistaken, there are certain verses in the Koran where you can recite daily just like taking medicine daily...
Please try yar..

Warmest regard,
Razanawati Haji Nordin

...................................................................................................................................................................
Assalamualaikum Pn. Norlaila,

Terima kasih di atas perkongsian pengalaman puan sekeluarga.
Ianya sebagai eye opener to me as a mother to 3 lil' ones (5yrs girl -2.5yrs girl -1.5yrs boy).
Tears came running down my cheeks as i was reading iman's blog.

Begitu berat ujian yang puan sekeluarga terima,

Begitu tinggi kesabaran yang dituntut,

Begitu besar pengorbanan yang dicurahkan,

Begitu berharga kasih dan sayang yang terpancar,

Begitu mendalam keinsafan yang datang menerpa,

Begitu terkesan pengajaran (tarbiyyah) yang Allah berikan.

Semoga tindak tanduk kita sentiasa mendapat petunjuk dari Allah SWT dan semoga Allah SWT memilih kita termasuk di kalangan "those rightly guided".

Bilamana mendapat ujian berat, kita selalu diilhamkan bahawa segala yang datang adalah dgn izin Allah, Tuhan yang Maha Pengasih lagi Maha Penyayang. Tiada sesuatu pun yang lebih pengasih dan lebih penyayang melainkan Dia.

Terimalah kita, ujian anak dan tarbiyyah ini dari Allah dengan penuh redha, syukur dan insaf kerana ada balasan terbaik yang Allah ingin kurniakan kelak.

<nasihat kepada saya juga> Buatlah yang terbaik sehingga bila kita kembali kepadaNya nanti, amanah anak (termasuk anak istimewa) yang diberikanNya, insya Allah telah kita sempurnakan sebaiknya.

Be strong and be patient,
You both are the choosen parents for Tajul Iman,
You are not alone, Allah is always with you.

Ikhlas,
Ainul Haniza Mohd Rashid
Pensyarah Pengurusan,
Fakulti Pengurusan Perniagaan,
UiTM Perak.
...................................................................................................................................................................

From facebook Autisme Malaysia

Jouyin Teoh -

Dear parents, how to get the most out of your occupational therapy sessions - posted earlier but link didn't show properly so reposted - this article is written by an OT so don't be shy about asking the right questions!

The Thinking Person's Guide to Autism: What to Ask of an Occupational Therapistthinkingautismguide.blogspot.com

Hi parents, a helpful post on what to ask from your occupational therapy services :)

Http://thinkingautismguide.blogspot.com/2010/07/what-to-ask-of-occupational-therapist.html

----------------------------------------------------------------------------------------------------------------------------------

Autism Documentary: How to Recognize the Early Signs of Autism

Iman and his father

A diary by Iman's father - June 28, 2011


Today I sent  Iman to UKM Autism Lab. Started from this month (up to Sept.) MaIA conducted a classroom intervention for five autism children including my son. It is like a classroom setting. Iman really improves a lot since he was sent to MaIA, he started to interact with our family members. Thank’s God.

At 9:15 am Iman and his friends started to go to the class. They were marching to the class by holding a long rope so as to make sure all of them goes straightly to the class. I feel so sad to see his faith as an autistic child. What will happen to him when I was no more in this world. Thus educating these children at younger age is crucial for their future development.


I keep on watching all of them marching to the class. All of them look so excited to get into their classroom heading by their teacher. To all the teachers at MaIA, I really appreciate your contribution in educating our children. May God bless you.

Tip's In Handling Iman's Sensory Problems

The following list tells you about Iman's sensory problems. We've got some solutions towards some of his behaviors, but the rest remains unsolved (thus I need some help if you can suggest something to us regarding his sensory behaviors) :-

1.He couldn't stand the sound of a blender, so we use to ask him to push the start button, it takes so long for him to get use to it. At last it works. My friend told me, autism children do have a very sensitive sensory, that blender might sound so irritating to his ears, thus we should be able to convince them that 'it's ok - there's no threat"

2.He is still playing with his own saliva - this problem remains unsolved

3. He likes to bite on plastic materials, also his clothes resulting them to have some holes all over his t shirts. I also need to change to a new handbag, sometimes once a month. One thing that worries me a lot is his behavior in biting the electrical wires, telephone wires etc. This is so dangerous. That's why I can't sleep early at night as I'm so worry about him - this problem also remains unsolved

IMAN'S PROFILE

My son, Muhammad Tajul Iman was born on 15th June 2003. He was like a normal boy when he was born until he was up to 2 years. We noticed something not right in him. He's physically normal, but there are a few things that makes us so worry. When he was 2 1/2 year old, we referred him to Hospital Besar Kuala Terengganu as I noticed my son always knocked his head for no reason. Also, I noticed he was not able to speak or communicate with us thoroughly, no eye contact, and temper tantrums. After a series on treatment and follow up, the Doctor at HUKM diagnosed him to have Autism and ADHD (Attention Defisit Hyperactive Disorder) problem. It was in July 2005. That was only 2 months after my Phd registration at UKM Bangi. Now, he is already 8 years, eventhough he's yet to speak, but he seems to have lots of improvement since I sent him to MaIA (UKM Autism Lab) in March 2009. I hope this blog will help you to get a clear picture on what is Autism and help you to cope with your children, students and also with those Autistic person in your neighbourhood.

We need to educate parents, teacher and caregivers, also to help them to cope with their daily lives. It's not an easy way to deal with children with Autism. We're chosen by the God and to have such a good commitment in our lives, education and all the support materials are crucial for us to survive and to help other people in  need. Not just among us, we hope this page will be able to make people out there to understand more about Autism World. So that they will always be there to support us. Thank you.

Video Interview With Parents at MaIA UKM

To all my friends, here I show you our video interview among parents of Autism Children. I'm sorry as this video is yet to be translated to English version. For the time being it is in Malay Language, hope to get you an English version ASAP.

VIDEO - Press to Preview

Iman's/Parents's Diary - A process to know you Iman

30th June 2011- Mum's Diary

Today we're on our trip to Petrosains KLCC. Today I noticed that we parents should be more attached to our son's education centre. When we spent time together on a trip to KL, it's gives us an opportunity to interact with teachers and other parents also. I do bring Iman's other siblings as I believe it'll help them to release their tension also. To me going for a trip today is like a "Wow moment". I remembered a book form Jamilah Samian "Cool Mum Super Dad" that said parents should have their own precious moments together, so start thinking about a candle light dinner, going to watch movie, bowling, etc etc with my beloved hubby. My daughter thank me so much and ask whether it's possible for us to go to karaoke, I said "YES". She's so happy and I suddenly aware that all this while we've been so stressfull and have limited time for ourselves. My husband and I seems so busy with our Phd since 2005, also we really committed to Iman's treatment and trying to cope with his situation, at the same time, we tend to ignore the rest of the family members. Poor kids. Mummy will never do that again.

Back to Iman, while talking to his teachers today, I got a positive feedback about him in school. He seems to be the most behave student in class. It really surprises me a lot as at home he seems to be the opposite side of him in school. He keeps on pass urine (once in 10 minutes), doing all his bad habits like biting on his clothes, playing with the water at our kitchen sink etc. Something is wrong somewhere. I'm in need to parents education I think. Dr Hasnah gives her positive feedback. There'll be a weekend class for us on parents education. Well I hope so Dr Hasnah. Thanks for your concern!

20 th June

Today is my 40th Birthday. On the way to school, I forced him to eat some bread in the car as he refused to have breakfast this morning. I didn't know that my son will be very angry and threw his temper tantrums again. I cried in the car. After a while I noticed. There's a new lesson for today. "Never force autistic child to do something that they don't want to". So to all my friends out there, please do not do the same mistake. he almost broke my windscreen today (for the 3rd time this year). Thanks to God, it didn't happen today.............. 

Health Tips For All The Parents Out There

Well this is my advice to those parents with autistic children. We got to stay healthy in order to live our life. Thanks to Allah as last year I came to know about Herbalife. I admit that my live was so terrible the first 3 years after my son was diagnosed having 2 in 1 (Autism and ADHD). He's severe Autisme. Iman was diagnosed having Autisme and ADHD in Sept 2005 and I registered my Phd at UKM in July 2005.  Until now I'm yet to complete my study. And I don't know whether there's a "YES" to my hope. My health condition get worse, I was obese, I got asthmatic problem (maybe because too much crying at night) and diabetes.

Back to my health profile. My weight was already 90kg when he was diagnosed. I was also a GDM (Gestational Diabetic Mother) for all my 4 pregnancies. Thus all were Cesarean babies. I started to jap insulin (10 units) since I carried Iman in my womb. I didn't know if this might contributed to his Autistic and Hyperactivity problem. My husband also got High Blood Pressure since 2006 as the whole family can't be in bed early (as the earliest for Iman to sleep was at 3.00 am everyday and this continues until June 2009).

I was growing up to my maximum weight (108 kg on 10th March 2010) and I was ordered to jap insulin (15 units) on 1st April 2010 if my Blood Glucose stays at 15-19. Alhamdulilllah, with Herbalife I managed to get myself free from Insulin Injection as a miracle happen to me. I met a person on 10/3/2010 (only after I got an accident as I cried all the way from the clinic to the University since I was ordered to jap insulin. I can't see a car at the junction as I was really burst in tears that day. Thanks God as nobody was injured that day).

I came to know about a Nutrition Club while I waited for a bank to open. I drink a free sample at the Club (only 1 hour after the accident). That lady who offered me to have a drink that day is my Angle. Her name is Azlinah Ahmad. She made me came to the club for 8 days consecutively (for her to monitor my Diabetic level) but I came to the club 2 weeks consecutively. Thanks to God that on the 1st April the Doctor said that I no need to take insulin. I remembered that day when I cried on the Doctor's shoulder after she said "Laila, if this result stays (for another 2 weeks - Blood Glucose 6.5), you no more have to jap insulin. Just control your diet. Until now my fasting Blood Glucose result stays at 4.5 - 5.5, the most is 6.

My husband's blood pressure also back to normal 4 months after we took Herbalife. The best part is his eyesight became better as he managed to reduce the power of his lense! Thanks to Allah. God still loves me and my husband as he want us to be healthy for our gifted child. Now we enjoy a healthy lifestyle with Herbalife. Only with this product we can increase our plain water intake everyday as the products itself enhance our healthy eating habits. I reduced back to 90kg only after 2 month with Herbalife!! And today (18th June 2011) I'm already 85 kg.

So my advice, please log on to www.myherbalife.com and register yourselves under MY202952 and my Last name is MAT TAHIR. Let's take a healthy food for us to live a better life. The Herbalife tea makes me feel better, it's also anticancer. I use to commute from Bangi to Shah Alam (it takes me 1 1/2 hour everyday from home to my workplace). I can teach up to 6 hours a day. This product is so EXCELLENCE!!! Please view other testimonials in the following videos, to sign up and to know in details please log on to http://tjl-weightlossgain.blogspot.com/