Understanding Autism Song

IMAN'S STRUGGLE FOR EDUCATION

It has been sixth month since my son was terminated from Maia UKM. Everyday until now, my son keeps on saying "Maia" "Maia", "UKM" "UKM". I cried in tears every time he insisted to go back to his previous education centre. Since he was terminated in July 2012, I'd been seeking for some other alternatives, at least a better option. I managed to send him to a Government School, Sek Keb Jalan 6, Bandar Baru Bangi, but it's just operating for half day. I couldn't find a taxi driver who is willing to send him back  from school everyday.

As a result, I got to be in Bangi until 12 pm, sending him back to my house, then drive my car to UiTM Shah Alam. I feel so guilty to my organization. I got to stay in my office until 9 pm everyday, for me to fulfill my working hours, as I was required to have a 39 hours per week as a lecturer at UiTM. At last, I got a "memo" for not being able to meet my organizational requirement. I'd been thinking to quit my job, but I don't think I can make it with a single income.God please HELP ME. Please give me some strength FOR MY SON....

SEEKING FOR DENTAL TREATMENT

Iman had a severe toothache. He had been suffering for almost a month until now. We yet to find an option for him. Last Friday I brought him to Klinik Kesihatan Bangi but the Doctor fail to treat him. The Doctor need to jab him to take out the teeth but he couldn't sit still. After some time the Doctor at last referred him to the Mouth Surgery Specialist at Hospital Serdang. So I hope whoever read this blog and have some other alternatives for us let us know via e mail to tjlddn@gmail.com. I really appreciate your help.My son suffers a lot. He cries all night telling me "sakit" "sakit". All the family members couldn't sleep. Pity my kids!

School bullies on autism children

Research published in Archives of Pediatrics & Adolescent Medicine shows that children with autism spectrum disorders, who typically have difficulty in communicating and forming relationships, are far more likely to be bullied than their non-autistic peers.

 “I would call it a profound public health problem,” said Paul R. Sterzing, lead author of the new study and an assistant professor at the school of social welfare at the University of California, Berkeley. “The rate of bullying and victimization among these adolescents is alarmingly high.”

The children at greatest risk, it turns out, appear to be those who also hold the most promise for leading an independent life. The researchers found that the risk of being bullied was greatest for high-functioning children who end up not in special education programs, but in mainstream classes, where their quirks and unusual mannerisms stand out and they are more exposed to bullies.

Many parents of children with autism already are well aware that their children are taunted and tormented at school, but the new study suggests the problem is pervasive. Dr. Sterzing’s data, collected from a nationally representative sample of 920 middle- and high-school students with an autism disorder, shows that 46 percent have been bullied.  By comparison, in the general adolescent population, an estimated 10.6 percent of children have been bullied.

The findings are based on data collected in 2001 from a larger 10-year study of more than 11,000 special education students. Parents of autistic children and school administrators were asked to report on instances of bullying that occurred in the previous year.

Carly's autism girl express her feelings by computer

Carly Fleischmann has severe autism and is unable to speak a word. But thanks to years of expensive and intensive therapy, this 13-year-old has made a remarkable breakthrough. Two years ago, working with pictures and symbols on a computer keyboard, she started typing and spelling out words. The computer became her voice.


Read more...

WHAT'S NEW AT AUTISM BLOGS/WEBSITES

Today I've found these sites for those who're interested to get some information:-

1. From You Tube   http://www.youtube.com/embed/nDC5AWIGmRM?rel=0

2. From facebook "Autism"

 http://www.facebook.com/Y3KTutorInYourHome1

3. From Facebook "Autisme Malaysia" (dengan ihsan Rosnita Sadali) :

Rosnita Sadali

Salam.. sharing doa utk anak2 yg speech delay kaedah rawatan As-Syifa.
1) Baca Surah AzZumar (surah no 39) ayat 24-37, baca 3 kali + doa apa yg dihajati setiap kali lepas Solat Maghrib & Isya'.
2) Baca Surah Al-Hajj (surah no 22) ayat 40-55, baca 3 kali + doa apa yg dihajati setiap kali lepas solat Subuh, Zohor dan Asar.
Semoga dgn usaha kita yg sedikit ni, dapat dimakbulkan doa kita spy anak2 dpt bercakap. insyaAllah yakinlah bahawa doa ibu2 ni mustajab : 

4. From Facebook "Autism Mothers"

A useful website for you : 

http://www.autismmediachannel.com/

Alternative Medication for Autism

This page is made available for those who're interested to find an alternative medication for their Autistic children. I'm not an experts in Autism, neither a medical Doctor. I'm just a mother, with a Food Science background and very fond of seeking for advice, also seeking for some materials regarding to my son's treatment. To me, I don't mind trying any product as long as it is safe, HALAL/certified by Islamic body IFANCA, and most important thing it's nothing to do with drugs. I had already made a survey on a particular products or foods available in the market. This is what I'm going to share with you.

1. A company called Fortune Resources  from Malaysia had already implemented Islamic Manufacturing Practice (IMP) and had come up with a series of products such as  Smart Cocoa A+, AL Khaira Juice, Bird's Nest Al Munawara etc. Today I heard there's a Autistic boy aged 4, had shown some improvement only a month after his mother gives him the Smart Cocoa A+. The information is available at http://smartcoco2u.comhttp://smartcoco2u.com

2. Acupuncture treatment. - I'd once read an article about  this in a magazine, but sorry, I'm yet to remember exactly the name of the magazine. But the same issues was discussed on TV3 during "Buletin Utama" when they talked about acupuncture and how it can be used to treat Autism

SUPPORT GROUPS FOR AUTISM

Here I list down a few support groups :

1. Facebook Autisme Malaysia Parent's Support Group

2. Blog Makmal Autisme UKM http://makmalautisma.blogspot.com/

3. NASOM http://www.nasom.com.my/

For donations please refer to http://www.waqaf.ukm.my/Pages/TabungAmanahDanaKanak-kanakIstimewa.aspx 

The burden of Autism

By HARIATI AZIZAN (The Star, Sunday April 27, 2008)

Autistic children need a range of intensive therapies

In Malaysia, awareness of autism has increased in the last few years but more research is needed to assess the situation and to draft an efficient support system to address it.

A MAXIMUM of US$80,000 (RM251,075.12) a year – that’s the cost estimated by the Autism Society of America (ASA) for the average parent or family to look after an autistic child in the United States.

Broken down, this amounts to US$6,666.70 per month (RM20,992.90).

This figure covers the cost of “modern” treatment such as early intervention, physiotherapy, speech therapy, behavioural therapy and others.

                                                                                                                             Readmore...

Autism Spectrum Disorder Statistics

Experts estimate that two to six children out of every 1,000 will have autism. Males are four times more likely to have autism than females.

Therefore, it can be summarized that between 1 in 500 (2/1,000) to 1 in 166 children (6/1,000) have autism.

 autism spectrum disorder in the United States. However, using the occurrence data stated above, we can estimate that if 4 million children are born in the United States every year, approximately 24,000 of these children will eventually be diagnosed with an ASD.

Distribution of Autism Disorders among Interactive Autism Network (IAN) with ASD, by first diagnosis

This chart shows the distribution of the parent-reported first diagnoses that the affected children enrolled in IAN Research received from a professional. Many parents report a change in their child’s diagnosis over time. This sample chart displays only information on the child’s first diagnosis. This chart may indicate how autism spectrum diagnoses in a state vary from the national pattern

What was the child's FIRST autism spectrum disorder (ASD) diagnosis?

Parents are given the following choices:

• Autism or Autistic Disorder
• Asperger's Syndrome
• Pervasive Developmental Disorder-Not Otherwise Specified (PDD-NOS)
• Childhood Disintegrative Disorder (CDD)
• Pervasive Developmental Disorder (PDD) (choose only if none of the above apply)
• Autism Spectrum Disorder (ASD) (choose only if none of the above apply)

Assuming the occurrence rate has been constant over the past two decades, we can estimate that up to 500,000 individuals between the ages of 0 to 21 have an autism spectrum disorder. However, many of these individuals may not be classified as having an ASD until school-age or later. Because behaviors related to the autism spectrum disorders are usually present before the age of 3 years, it is important to make sure the individuals are being identified and are receiving appropriate intervention services as early as possible.

• More children will be diagnosed with autism this year than with AIDS, diabetes & cancer combined

• ASDs are reported to occur in all racial, ethnic, and socioeconomic groups, yet are on average 4 to 5 times more likely to occur in boys than in girls.
• If 4 million children are born in the United States every year, approximately 36,500 children will eventually be diagnosed with an ASD.  Assuming the prevalence rate has been constant over the past two decades, we can estimate that about 730,000 individuals between the ages of 0 to 21 have an ASD.
• Studies in Asia, Europe, and North America have identified individuals with an ASD with an approximate prevalence of 0.6% to over 1%. A recent study in South Korea reported a prevalence of 2.6%